Disabled and desperate

Over 50, Overweight, Life feels over

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26/12/2007 at 23:26

Aww MicknPhil .. that's really heart warming .. thank you so much for your kind words ..

 I am sorry to hear that ill health is plaguing your family .. long term ill health is very hard to deal with .. we can all manage to cope with pain or fatigue, general ill health for a short while .. but when it turns into a long term illness then slowly little by little it can drag you down ..  even a small pain seems impossible to cope with ... because it never ends .. it's always there .. day after day .. and if folks haven't had to deal with never ending ill health then they simply don't understand the mental fatigue that goes along with it ..

 When people ask me what it's like having fibro I usually ask them if they have had 'flu .. proper influenza .. not the sniffles or a common cold but 'flu .. because that's my life .. that's how fibro makes me feel every day .. every week .. every month .. lethargic, woolly headed, unable to think clearly, achey, sensitive all over and generally lousy .. and for anyone trying to imagine what their loved ones are going through during their long term illness I can only suggest they think back to when they were feeling really ill at some time .. and then imagine it going on for ever and ever ..

Surprisingly that does seem to help a lot of folks to understand what having a long term illness does to the sufferer ..

 Heheheh .. and most long term unhealthy people would be scared to death if they woke up feeling bright and vigorous .. full of energy .. mind racing at a mile a second .. yikes .. I'd probably think I was ill  hahahahha

 Gentle huggles, for anyone feeling ill today ..

31/12/2007 at 08:34

Hi Patootie,

Hope you  had a great Christmas.

Small steps hun - you can do it!

31/12/2007 at 09:38
Keep on keeping on.
31/12/2007 at 10:06

Have just found this thread...

Wanted to wish you all the very best for 2008 Patootie - you sound like a very determined lady, and surely that's half the battle isn't it?  Keep goin', you're doing great!

I thought about something I'd seen in a catalogue.  It's basically a kind of 'mini-bike' that you can use whilst seated.  I might have even seen one in Tesco's.  If I find anything I'll post a link.

31/12/2007 at 10:11

This is the type of thing I was thinking of:


You could always check with your GP or physio (?) to ask if it's suitable.

31/12/2007 at 10:30

Patootie, wishing you all the very best for 2008. I was wondering if you could manage an exercise ball if you had a bar or something to hold on to while you sat on it?

Keep on keeping on.

Mick, others may have better grammar or spelling, but not your insights, so what you say and post is really valuable.

31/12/2007 at 11:18

Sorry I haven't been in the forum for a few days .. I had a nice quiet Christmas .. watched some movies I had recorded earlier this year (in full expectation of the TV being awful over Christmas .. and it was, wasn't it ) .. had some lovely cheeses .. a few drinks .. and generally pottered ...

 Thanks for the 'bike' idea .. I have  tried one of these .. if the pedals were powered and went round on their own it would be great .. I could strap my feet in and just let the 'bike' do the moving of my legs for me .. but I'm afraid it's the old 'fibro' problem of my brain sending the 'wrong' signals again .. any exercise that I do for myself gets 'jumbled signals' and the muscles either overwork or just don't work in the right directions ... passive exercise though is very good .. that way my brain doesn't send any signals and the nmuscles actually work properly ..

 I shall try this wobbleator (vibrating platform) thing in the New Year .. see if that works for me .. a friend has one I can borrow for a few days .. if it works I will get one .. I've seen them on offer for just over £100 .. obviously that's a very basic machine .. but I don't care if it hasn't got all the infinitely programmable electronic wizardry that  calculates to the Nth degree calories used or whatever .. I just want the wobbleator part ..

 Have a wonderful New Year everyone .. and a very happy, prosperous and fit 2008

31/12/2007 at 11:34

Sounds lovely Patootie, you are dead right about the telly.

I enjoyed Ballet Shoes and Oliver Twist (although is wasn't Dickens) the rest was a big yawn - thank goodness for a day a the theatre on Friday!

Have a good New Year and good luck with the "Wobbleator" I'm told they're very effective.  

04/01/2008 at 09:23

Happy New Year everyone ..   Okay .. so I'm a little late with my greeting  .. but in my 'fibro' world it could have been today, yesterday or even tomorrow

 Anyway .. todays the day .. I get the loan of the 'wobbleator' .. I did try it out at my friends house .. and NO nasty aches or pains .. which is a flippin' miracle .. so I shall 'give it a go' .. even if it doesn't 'do anything' on the 'physical' side  .. what I have found is that it makes me laugh .. standing on that plate with it zipping from side to side and my whole body wobbling around with it is just soooo funny .. and we all know that a good laugh gets the 'nice' endorphins working overtime .. and they help reduce pain .. so on the 'mental' side .. it can do no harm .. only good ..

 Obviously I shall take it easy to start with .. the timer goes from a very modest 30 secs which I dare say isn't enough to really do anything .. but better that than start with 2 minutes and be in agony the next day .. I shall try and build up to 3 minutes over the next 10-14 days or so .. and then see how I get on ..

 Did anyone watch the programme called 'Half Ton Mum' on Channel 4 a few days ago  ..  ohh my .. that's quite sobering to see someone who weighs 64 stone .. even I feel like a cat walk model in comparison .. and during the programme it said that over 2 MILLION Americans weigh over FORTY stone .. 2 million .. 40 stone .. yikes .. blimey ... they briefly showed a guy who weighed almost 80 stone being cut out of his home by firemen.. honestly it made me cry .. it is just so sad to see folk be like that .. it was just awful .. they had to use forklifts to manouvre him and big trucks just to get him to hospital  .. I hate to say this .. but can't think of any other comparison .. he was just a big lump of 'blubber' with a tiny head poking out of the top ..

I think the image of those men trying to push and shove his 'floppy blubbery body' around will keep me eating healthier for the whole of this year ..

04/01/2008 at 11:23

happy new year patootie. you have willpower, which means you are halfway there already.

you may only be going at snail's pace but as mick says, snail's pace is better than no pace at all.

best of luck in everything you do and keep at it!

04/01/2008 at 12:06
Good Luck Patootie - friends and laughter are always a good mix to make you feel good, I admire your determination and guts, keep at it girl! I look forward to the funny stories of the 'wobbleator'!

I watched the half ton mum and I cried when she died, terrible condition to be in, she must have been terribly unhappy.

wishing you a healthier 2008!
04/01/2008 at 14:47
Glad you're having fun with the new machine - wobble on Patootie!
04/01/2008 at 15:42
jjjjuusssstttt dddiiidddd 2222 mmiinnnuuutteeesss ooonnn tthhheee wwoobblleerr ... ggiiggggllleeesss ... eeeevveeennn mmmyyy eeyyeeebbbaaallllsss wwweeeerreee vvvviibbbrraaattting ..... hahahahahhaahahahahahahahhaa
04/01/2008 at 16:42
04/01/2008 at 16:45

Great to hear that you've managed 2 minutes, and it certainly sounds as though it raises your spirits!

Keep on wobbling.

04/01/2008 at 22:01
Hi pattootie, just checking in to how you are doing.  having great fun by the sound of it  Keep it up, your determination is inspiring!  it's all down to attitude in the end - if you think you can you will!  wishing you all the best for the new year.
04/01/2008 at 23:03

keep going

Stay on this thread though


Dustboy    pirate
05/01/2008 at 00:20
2222 minutes, crikey, respect;O)
05/01/2008 at 10:08
Hiya Patootie, well done on your wobbleator (sp?) session! 
05/01/2008 at 11:43

Sigh .. I shouldn't have done the second 2 minutes just before going to bed .. (giggles at Dustboy .. hahahah I wish I could do that long !!!) ... had cramps in my feet and lower legs on and off through the night ..

 So .. I will start again .. 1 minute maximum .. when I get up .. and in the early evening .. NO more before bed .. it's so frustrating having to be uber sensible ..

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