Disabled and desperate

patootie - i don't know what part of the country you are in but i saw an advert in the free london paper this morning (metro) and thought of you.

research trial for fibrommyalgia medication

the department of rheumatology at kings college hospital is conducting an international study investigating a possible new treatment for fibromyalgia.

if you are at least 18 years old and suffer from fibromyalgia, you may qualify to take part.  participation will involve taking either study medication or placebo for 14 weeks.

you will be monitored throughout with regular visits to the hospital including questionnaires, blood tests and clinical examinations.

all travel expenses will be reimbursed and information will be strictly confidential.  if you are interested in participating, please contact samuel mugari on 07948 835216 for further information.

ref: 07/MRE03/18

hope you are ok in the adventures of the wobbleator!

Giggles .. how about 'Me and my Wobbler' ..

 I'd be interested in the trial tweetyateallthepies .. 

 hang on I'll go and have a bit of a google  .. ohh lorrrs just came across a dozen sites saying .. "fibromyalgia gone in days" .. honestly if that were true I would have got rid of my fibro 14 years ago .. it does make me cross as it gives false hope to thousands of folks newly diagnosed ..

 Hmmm ... but what's this  ..  just come across a really interesting 'new' fibro site .. bookmarked it and will go back to read more .. it basically says that the C1 vertebrae is compromised .. and this causes many or all of the symptoms .. yes I can understand that .. and just a short while before 'really' getting ill with this syndrome a car I was in had a high speed rear end shunt .. from which I had mild (but recurring with problems) whiplash ..

 Good grief .. just scanning down the pages .. "Fibromyalgia sufferers have one of the highest suicide rates" .. hmm well it won't claim me thank you very much ..

 I think the phone number is a mobile number isn't it .. I'll look it up and see when the cheapest time to ring is .. many thanks tweetyateallthepies .. thank you for thinking of me .. it's very much appreciated ..

 My story is similar to the very first one posted on this thread.

Told I had a few weeks to live after spending nearly a year in the Marsden Hospital, with tumours in the liver, brain and skin.Hated running, swimming, netball anything really, but having found myself still alive after a year thought I would face one of my fears and do something fitness.

That was ten years ago. Now I find myself with a place in the FLM. Great BUT I can only walk, fairly fast but 26 miles walking I am worried about being pucked up by the 'slow wagon'. How much time is allowed to finish, even for the extremly slow?

Thanks

Can't think of a name that describes just how slow I am (Sue) 

Well, Sue, the official Australian tour guide that ships Aussies up to do FLM says:

CUT-OFF TIMES
There are no cut-off times for the Flora London Marathon.

They should know! So it's just a little matter of making sure you can walk 26 miles, without worrying about how fast  ;-))

Patootie, it's been a couple of weeks since I was on the thread, and it's just remarkable to see the courage and determination your'e showing, AND how they're paying off. You are already starting to think of yourself as an athlete-in-training again, which you are. The Double-Wobbleator-Event must have been really great--and it's great that it made you laugh! You're entitled to some violins for sure, but I guess it probably makes you feel better when you have the upbeat jazzy playing in your head instead.

I'm just a bit worried because it's been a while since you've posted. Hope it's not a sign that you've been going through a rough time---but even if you have, come back in and tell us about it when you feel up to it.  We'll be here waiting!

(((((((((Patootie))))))) 

sue

realistically eight hours

where are you patootie

A guy I know who is partially sighted an disabled took ten and a half hours. He was guided by his mother, but I don't think there was anyone there to present the medal at the end, he had to apply to FLM to get it.

Well done Sue!

There's no cut off, so don't worry about that. I think Lyndylou's right about the medal but if you do finish in around 8 hours I'm pretty sure there will stiil be people handing them out. Concentrate on getting as much walking in as you can beforehand and just go out and have a brilliant time    

Let us know how you are doing Patootie, we're thinking of you hun 

yes but I don't think Mick n Phill will be slow!

Colin

Hi

Thanks everyone for your input. It has helped to stir me on and aim for around 8-10hrs with a following wind.

Sue (Painfully Slow)