I keep collapsing

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17/04/2008 at 12:03

Am glad that you're doing well Douglas, and Lorra. 

Its been a while but I vaguely remember being given the contact details of a place in Bristol that (i think) were like a cancer specialist hospital.  I had some leaflets given to me by a friend that she had got from there and it listed all these supplements that they recommended patients to take to keep them strong.  I remember spending at least £15 a month on selenium etc, but I never had a low count and never had to miss a chemo session.  Don't know whether it was to do with all the supplements, but I wasn't a runner then and on the whole was quite unfit.

17/04/2008 at 14:57

Hi Doug, Hope you made your next chemo. I also managed to enter the on-line ballot for FLM 2009 before it closed so fingers crossed. Managed to get an infection in spite of "normal" white blood cells so watched marathon on Sunday under duvet feeling very sorry for myself.

My next chemo, number 2 is on Monday. Do you have the white blood cell jab as a single dose or as a course of 5? I had them as a course of 5 but have asked for single dose and am now regretting decision - at least I could cope with course of 5 even though made me feel very shivery and as if I had flu.

  

17/04/2008 at 18:19

Hi Lorra,

Firstly, good luck with chemo 2.

Secondly and in answer to your question I had a single white blood cell jab on a Saturday. It was a tiny injection with a very small needle. I went away as happy as Larry whistling like a schoolboy.

On Sunday, Monday, Tuesday and Wednesday I continued to whistle.

On Thursday the pain started and the hospital provided pain-killers had marginal effect. It was a dull, nagging pain between my elbows and shoulders. On Saturday my GP gave me superior pain-killers (Tramadol), which had the desired effect, though some of the side-effects are not suitable for mentioning on a family forum (one of them was a male only side-effect so won't affect you).

Having said all this it wasn't awful, ghastly type awful. I put it at around 5-6 on a 0-10 misery scale and the second set of pain-killers did work.

Thirdly I try and maintain a germ-free life-style. I don't travel on public transport (luckily I'm self-employed and don't have to commute). I don't go to cinemas and other germ-laden environments. I am also very concious that most infections are caused by a transfer of germs from one's own hands to the mucous membranes of one's nostrils, eyes or mouth. Accordingly, if one can get into the habit of not touching one's face with one's hands, one's risk of infection is lower. Regular and thorough hand-washing is also a benefit.

All the very best with your treatment. Please keep posting on your progress.

Keep happy,

Douglas aka Leaping Wolf

17/04/2008 at 18:23
PS Lorra, for two to three days after each chemo session I take Zopiclone sleeping pills as the steroids have me buzzing like a blue-bottle.
19/04/2008 at 11:21

It's now 48 hours after receiving my fifth double dose with half steroids. Still slightly twitchy, but nothing like before and nothing like the reaction that some people have to chemo.

White blood cell count was 2.8, which to my layman's mind, is an amazing leap from the 0.7 seven days earlier.

In theory this is my penultimate set. However last time I saw my oncologist I asked him about having an extra cycle for luck and he didn't exclude the possibility.

Good luck Lorra with your bone marrow jab and I hope it's going OK.

Thanks again for your help folks.

19/04/2008 at 11:26

Glad to hear you are coping well Douglas.

Good luck Lorra.

19/04/2008 at 15:57

Good that you are feeling better with this cycle Douglas.As for the extra one I,d go for the belt and braces approach.

Lorra good luck for Monday hope the side affects are mild.

19/04/2008 at 16:00

kepp going you lovely people

xx

20/04/2008 at 08:21
Hipps, missed you in Connemara again!
23/04/2008 at 23:25

Hi folks,

Tomorrow I'm off for my single dose. Fingers crossed about white blood cell count, but it was pretty high last week, which is a good start.

I started to have very strange mental problems shortly after my last post on the forum. For 3-4 days I suddenly became seriously over-anxious. I mean really, really over-anxious. Normal day to day routine problems, like 1/10 on the seriousness scale, suddenly became like Mount Everest. I then didn't sleep for the worry despite strong doses of sleeping pills. Funnily enough the one issue that I didn't worry about was my health!

It was all very strange and rather unpleasant.

Suddenly I returned to normal, dealt with the molehills and slept like a log.

So things are fine now and, with luck, in 15 hours timeI'll have finished my 5th cycle. I've made a mental note not to make any decisions after my double dose as I'm not of sound mind.

All the best and once again thanks for your support,

Douglas

24/04/2008 at 08:20

Best of luck today Douglas.

And look after yourself Lorra

  

24/04/2008 at 09:23
Good Luck Doug and Lorra - thinking of you both xxxx
24/04/2008 at 09:32
Sending (( )) to Doug and Lorra.
24/04/2008 at 22:31

hope you are staying well folks, .........about that strange anxiety stuff Douglas. The brain is a funny thing. hope not too many unpleasant effects this time.

best wishes

25/04/2008 at 14:57
How's it  going?
25/04/2008 at 17:04

Wow! No chemo side effects, but vein problems yet again. I think I that I knocked the canula between blood test time and dose time. The chemo seemed to go in OK, but when the post-chemo saline was put on.....yow and wow.

The nurse de-canulered me and put a new canula in on the other (left) arm, but my right arm is now moderately sore despite liberal applications of Volterol and asprin. Anyway from past experience the pain will pass in a day or two.

Also interested to note that I'm now slightly anemic (10.7). This is a common side effect of chemo, but does explain why I get tired. I'm planning to eat entire herds of liver, spinach and red meat.

Thanks folks,

Douglas

25/04/2008 at 17:39

Survived second dose of chemo - They dosed me up on Lorezepam so cann't remember being sick - Progress. Chemo drugs went in OK but my arm still bruised and sore. Just got my white blood cell injections to go and 1/3 of the way there.

Went for a slow run today - as always good to be out and about. Makes me feel so much more positive. I am losing my hair very rapidly now. A bit upsetting when it first starts to fall out but becoming resigned to it now. I'm trying to look forward to the day it will all grow back! 

25/04/2008 at 19:45

((((((Douglas and Lorra))))))

Glad that's another one off the list for you both. xxx 

25/04/2008 at 20:22

Inspired and moved by you both as always.

Lorra - sorry to hear you are losing your hair and finding it upsetting - my sis had hers cut very very short and found it lasted better that way. Also it wasn't so surprising to others when it finally disappeared altogether.

Thinking strong thoughts for you both.
xx

25/04/2008 at 21:18

((((Douglas and Lorra))))

I have'nt visited this thread in a while and have just caught up.  It's really wonderful of you to share your experiences in such a positive and enlightening way.

I wish you both the very best on the road to recovery. 

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