Loss of control over leg while running and footdrop

21 to 28 of 28 messages
15/06/2010 at 11:47

TomS

Good that you have got them to do further tests - terrible that they were going to fob you off - is it NHS?Do you know who is going to be doing these futher tests? A consultant? What kind of consultant?Obviously it depends on what tests they are going to do but given your symptoms my advice is to go straight to a spinal neuro surgeon.

15/06/2010 at 11:53

Yes it's the NHS,  I am being referred to my local hospital (Stepping Hill in Stockport) I believe they have a specialist spinal unit there.  Not sure who I'm going to see, I was just relieved that they are sending me for further tests at least I am still in the system and there is still light at the end of the tunnel however dim

I was surprised that it was the same person who referred me that went through the results (she was the triage physio) not sure on the level of knowledge she has

Edited: 15/06/2010 at 11:57
15/06/2010 at 12:00

That sounds good. Keep pushing. Good luck!

16/06/2010 at 11:12

Hi Tom

 I had similar problems when I was around 23.  I used to get pain in the buttox, and pins and needles down left and right legs (at different times) as well as power loss.  My GP said it was sciatica and proberly as a result of a trapped nerve.  He buggered off on holiday and a locum stood in for him, and I made an appointmet and saw the locum who was not happy with my GP's thoughts.  In short I had CAT and MRI scans and in the end it turned out to be Ankolosying spondilitus.  So glad to hear that you are pressing home for an acurate diagnosis .

27/07/2010 at 10:30

Hello Richard, glad you found out what it was, at least you know, I find that it's the hardest part of it, not knowing what it is. 

Just back from the Orthopaedic spinal consultant and much as I expected everything works fine, I have (at last) been referred for an EMG (electromyography) which is the track my physio recommended but you have to go right around the houses.  Probably just another long wait again, but I have a good feeling about it this time.

27/07/2010 at 10:33
Just posting to turn on my email notification for this thread
24/02/2014 at 22:05

Hi Tom

Did you ever get sorted with this as I have the same problem.

After 5 mins running my right foot starts to lose control. Its starts slapping on the group. My big toe cramps and I know I have to stop.

MRI has revealed nothing and consultant not sure what it is. Has sent me for "proper" physio!! He hasn't discharged me and might do keyhole to check it out if physio doesn't  fix it.

Its interesting Richard that you got diagnosed with Spondilitis. This runs in the family but I have been told I don't have the heriditary gene which would cause it.

Thanks

25/02/2014 at 15:01

Hello Alan,

No still not right and considerably worse now, NHS for me was not a good route, I've now gone private and have seen a Sports and  Exercise Medicine Doctor which is quite costly but I haven't got a choice as now I can't even walk properly, I did try and get a NHS referral to him as he has a clinic at a local hospital... that was at the beginning of December and I still haven't heard anything!

SEM Doctor sent me for some vascular tests (££££) and they were clear, then an MRI (££) he has found an inward bulging disc and some labral tears (tears are apparently quite normal) I have seen a Nuerologist through the NHS and he sent me for MRI and missed the disc, he has recommended another Neurologist who specialises in muscle issues and a Physio,

Although it has been expensive to see him I think it is money well spent as he has taken the time to discuss my case with other Consultants specialising in this field and this has reassured me not to give up.

Hope you get sorted, it's a long hard road but don't give up


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