multiple sclerosis

18 messages
CF
16/04/2003 at 13:34
is there anyone out there who runs despite having MS? I was pretty keen (aiming for a sub-3:30 marathon) until diagnosed last August; now I can still run but my gait is affected & it is all a struggle and not so much fun somehow - but I am not ready to give up quite yet! If anyone has any experience of this & tips on how to cope, I would be v grateful to hear of them. Thanks
16/04/2003 at 17:31
There was a feature in RW a couple of years ago about a girl who had MS but was still managing to run - I think she was running half marathons?

Sorry, can't be of any more help but it might be worth emailing RW to see if they can send you a copy of the article.
16/04/2003 at 17:47
No words of wisdom, just a message of support.
16/04/2003 at 20:20
Sorry, I can not help but wish you all the best!
SLM
16/04/2003 at 20:55
Find a physio who specialises in MS (a neurophysio) - you'll be able to get details from your GP or MS nurse- and they'll give you all the advice and encouragement you need. Don't give up - there will be hard times, but you'll soon get control of your symptoms as long as you fully understand your condition and its implications.

The only advice I can give you, from what I've seen of other sportspeople with MS, is keep yourself healthy - your symptoms will be much worse if your immune system is low.

Good luck and stay strong, S x
17/04/2003 at 08:18
CF

Not much that can be added to the above - you clearly have a goal, and I say go for it.

SLM is right, there will be hard times, but you can always come here for moral support.

My very best wishes.
17/04/2003 at 10:46
If it's any inspiration, there's a football player in the Ross County team (Scottish 1st Division) who was diagnosed with MS 10 years ago, and still plays most weeks in the first team.

Have you visited the MS Society website? (www.mssociety.org.uk) There's a lot of information and advice regarding the condition there.
CF
17/04/2003 at 14:55
thanks very much everyone for the encouragement & ideas. I shall try to get a copy of that RW article, and shall bully my Dr a bit harder next time for names of suitable physios (at the moment, because I am still fairly mobile they don't seem to think that I need physio etc). And in the meantime, just keep trying & hope that things get easier with time.
Keep running all!
18/04/2003 at 08:46
Go well CF. Sassie xx
18/04/2003 at 13:05
Try your local physio clinic too. Mine has all sorts of patients, young and old, with a range of disorders, not just sports injuries.
They should also be able to point you in another direction if you draw a blank. Your GP on the other hand is probably at a loss - mine is with my arthritis.
There is also bound to be a surprising amount of info on the web - you just need time to go through it. Do try the MS society, and post messages on as many info discussion boards as poss.

Good luck and keep well xx
18/04/2003 at 21:02
No advice, just good wishes from me. XX
13/01/2008 at 15:55

I see it's some years since you made this post, just interested to hear how you are getting on ?

I also have MS and have continued to run, although there are times when it is tuff going - if I can compare it to anything, I have two very good friends both with MS friendships way exceed our MS diagnoses. We all have very different life styles,I am without doubt the least affected so far, is it down to exercise and a very clean life style or  is it just the straw you draw? don't know.

I wonder often if tomowrrow will be very different, but I'm just going to keep going until I can't.

19/04/2008 at 19:52

Hi there. CF andHenry 63 and others I've just been diagnosed with MS.

 I have ran three slow marathons, last one on 16 March in Rome. Diagnoses all new, but just thought I would try to come on here to find out if there are people running with MS. I have to wait and see how this is going to pan out for me as symptoms currently are a bit scary., although Doctors say they are hopeful ? I would love to think that these symptoms will go away and that I can start running again,(shorter miles) as a way to keep healthy and  strong for future.

So it would be lovely to chat more if you get this message.

All the best Tiddles

22/04/2008 at 15:55

Hi Tiddles,

 Great to hear from someone in the same boat, not that it's great having MS, it's a real nuisance. Regard myself very lucky that I have no major disability and have been disganosed a few years now, so things are looking good, the longer without relapse the more positive the outcome hopefully, keeping fingers crossed.   Have worked with someone who became severley disabled in a very short space of time, so I am forever grateful that hasn't happened to me,  also a close friend who also has a fairly high degree of disability but manages to soldier on despite everything.

Truly believe keeping as fit as possible helps, there will be times that it's simply not possible, but when you can, go for it, the stronger you are helps you through the times you can't function fully. Swimming to keep you cardio strong is good and much easier on you,so in the bad times swim. All those numb bits and pins and needlesthe dragging leg or legs etc they are really irritating, but I just carry on you get use to it sort of.

 Keep on running I have, it does your sole good, even if I am slower than I want to be, who cares, never judge a book by the cover if people knew what you were struggling against they would applaud you so keep on running!

take care.

09/10/2012 at 17:34
I know this is an old thread but just wondered how everybody's doing?

I've been recently diagnosed with MS and now that I'm back in remission am back running again although I think it'll be a while before I'm back to my previous weekly mileage of 20!

Was just looking for some tips if anyone has any....
09/10/2012 at 18:27

I am still managing to run and I'm eight years diagnosed, strongly believe my life style has been a saviour for me. I think Weight training is also essential, think it helps to keep gait problems under control to some degree.

I haven't had just as good a year, a number of flare ups and some long lasting but, each time I'm able to return to running, it's frustrating as it can feel like starting from scratch some of the time.

My Gait is certainly an issue as it does cause injury you have to pay attention to that and not push on to much, difficult I know, but you can end up with knee, ankle hip problems that are painful. 

I did invest in a treadmill last year, which I have got use to using, I feel more secure and not as exposed as when I'm outdoors, but I'm determined to run for as long as its physically possible. Don't let people put you off running because you ahve MS as many will, I've managed for 8 years maybe not as many miles 10 -12 per week now, but I can still do it, Tortoise and the Hare is what I believe in, keep on running Happy Bunny! 

09/10/2012 at 18:47
Thanks so much Henny - it's good to hear that you are still able to train. Although I'm newly diagnosed it's thought that I have had this for many years during which time I've been very active - I'm sure it's being fit that has helped me - the only difference is that I now know why I trip and fall a lot - many a time I've returned from a run with scabby knees!
My last relapse knocked me for six and its taking a while for things to settle down - at least I now have an excuse for being slow!

I hope you're keeping we'll now
09/10/2012 at 18:48
Ooops - "well"

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