Im a seasoned runner (15 yrs) but new to epilepsy
I've been epileptic for 22 years now, since I was 6ish. It's never affected my sport - I swam competitively at school, I've got a green belt at Judo, have fenced, trampolined and cycled.
I've been on my current medication for 12 years (they didn't medicate me at first because my fits were only one a year and they hoped I'd grow out of it, put me on valproate at 12 when the fits became slightly more frequent,then changed it to lamotrigene when I was 16). Once the medication was right, I've had no further fits (11 years now and my driving licence is no longer only a 3-year one).
Basically, if you are lucky like me you may just be able to take the medicine twice a day and forget about it otherwise. Yes I have a necklace, I carry a card with my medication details and so on, but that's no hassle. I'll never be able to scuba dive, but that's not really much of a hardship.
Good luck and don't despair.
Just realised you were asking about being diagnosed in later life - sorry. I hope my reply helps in some way anyway.
Paul you will get over the devastated bit. Loads of people have it but just don't wear a badge and you'd never know. I do remember the lack of confidence after a big fit, the fear of having another one in a difficult situation (big meeting, public event, whilst alone with child, walking cliff path/isolated spots or cycling) or a big injury (last one left me with a 'night in resus/hospital' head injury unfortunately). A few months of making less sense than normal and I'm back to myself. I suspect you've been here with the stroke though?
Depends how well controlled yours will be as to how quickly you get confidence back.
Some meds make you feel like death. I swapped mine for that very reason and am very happy on current ones. It's now just another drug I take and epilepsy doesn't exist (I have decided). I have my licence back. I'm a lapsed runner but cycle, so similar issues. Probably the best advice is to carry id and a card (you can get epilepsy specific cards free from BEA) and consider your routes-either telling someone or sticking to populated areas. Carry a phone and make sure you fuel and hydrate well and don't over do training. Be well rested. (I don't do any of that however, because denial is working best for me )
It's early days for you- things will stabilise
Thanks to you both for your positivity. Its been 4 weeks now since my triple-seizure
As you both say its the confidence knock and fear of future events. My wife worrying if a drop the shoe or the toilet seat..
I've sent off for a bracelet & have also setup Google Latitude on my phone so my wife can track my whereabouts.
I'm hoping I can start thinking about some gentle exercise apart from walking soon and get back to what I love and the psychological benefits that it brings.
As you both so its the fact that it is quite a silent/invisible community (which is a good ting) because its not like wearing a plaster cast or walking with a limp.
I can certainly relat eto that Paul. I was diagnosed at eighteen but I'm sure it still really knocks you at any age. So glad that there's online communities around now for people to swap info/ideas etc. I've done four marathons and someone who used to post on here has done similarly.
Here's a couple of links, you may already have found them but if not they could be useful
4 weeks is nothing. It probably is time that will make you feel more confident.
living with epilepsy can be difficult for some people, that is way managing epilepsy can evolve as the master alternative and solution, but it is not just about taking medication only, It is also important for you to look after your health, monitor your epilepsy and your response to medication and take care to stay safe. Getting involved in your care in this way can help you feel more in control of your epilepsy so that you stay well and continue your life. People with epilepsy can live normal lives. Many athletes, authors, politicians, entrepreneurs, doctors, parents, and artists have epilepsy.
you can read the full article at:
with best of luck
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