No problem, happy to help if I can. For me now the main issue is exercise/stress intolerence. Do too much and a day or so after I feel ill. It varies but generally acute headaches often right behind the eyes so my eyes ache, general aches and pains, glands in the neck swollen and painful which can also go into the jaw and seem like toothache. Feel like I'm in a haze, difficulty with concentration and tired which is not resolved with any amount of sleep. When I first had it I had all of the preceding constantly for about 9 months, the headache was the worst, it gets very demoralising after a while...
Your trip away sounds great, don't be tempted to get out too much though!
I think any stress reduction would be beneficial be it mental or physical. I had a bacterial issue in my gut likely brought on by a bout of norovirus a few years before. That certainly helped but did not sort the problem. Currently I'm tackling the issues caused by the genetic defect referred to above. I don't know if it can be resolved or if it will cure me but with the lack of treatment available for fatigue I would rather try and find out. There's no easy answer but with care there's a good chance you'll come out of it fine in time. Anything you do though that feels like it's helping will certainly be worthwhile even if just as a placebo. If you could get a good break from work so you can really rest, even get away to somewhere warm for a while, anything that helps you relax, sleep well and give your body a chance to fight it. And don't underestimate the value of a good diet eating perhaps smaller but more frequent meals. A vitamin B 100 complex supplement helped me the first time. Google Dr Myhill, plenty of useful help on her website.
Hi Cinders, if you'd care to, try googling MTHFR677T. It's a genetic defect that is linked to many illnesses including chronic fatigue. I've been tested and along with an odd sense of humour and clumsiness, I've inherited it from both my parents which is worse case scenario. May be of use to you.
I've had my moments, but that is likely why I'm where I am now. I was feeling better after about a year so went straight back into marathon training. All was going well and long runs were back up to 20+ miles but gradually the problems returned. So exercise just dropped away over 3 or 4 months leaving me pretty much where I am now. I have occasional bouts of walking for perhaps a week or two but mostly just keeping up with work is enough.
Hence why I was pushing hard at you taking it easy - the body takes a while to recovery and I believe will still be repairing after you feel okay. Resting heartrate on waking is definitely important - don't do anything strenuous until that is normal and ideally for a few days. Really hope you sort this out, it gets more than a bit tedious after a while!