Wide awake, coughing my lungs up. It's now been at least 5 wks of coughing. Think I'll make a 3rd trip to my GP tomorrow. Not sure they can do much but its worth a go. Chemo brain, no idea what any of you have done ( been swimming with crazy work colleagues and drowned them......or maybe that's just in your dreams CM ) My sister is cooking lovely meals and they all taste wrong and not very nice.
TT stay away from HRT! Well I would say that now wouldn't I? I have one more month before I start my 10 yr 'sentence' of tamoxifen. Great. I am so looking forward to having induced menopause, hot flushes, etc etc. It's amazing all the products I have found out that you can get on prescription to help with certain symptoms. I shant go into anymore detail for fear of TMI!
So the latest oncologist was very nice and helpful. She didn't say one way or the other because as I well know now it is a grey area and there isn't a right answer. However with all the treatment I've had and am going to still have, there is a 90% chance that I will not get a local recurrence (we're talking regrowth of the cancer in the same place, not a new cancer), and radiotherapy will add another 5% or so, making it 95%. So for that extra 5% i'm willing to take the risk. Plus with the chemo and hormones there is a 95% chance I will still be alive in 10 yrs time. Those are pretty good odds frankly so I'll stick with that.
Last chemo tomorrow. Of course got the phonecall telling me I'm neutopenic again, so have to go in early for bloods. Those neutrophils better have come back up again. I am going to a psychology seminar on stress management as well. I will come back calm and full of zen......or something.
Off to Brighton tomorrow with sis and cousins, prob told u that already. Looking forward to my girlie weekend.
vixo he does clinical work but is a surgeon, not an oncologist, which is why I won't be seeing him, but one of the clinical oncologists at Guys, who he has recommended. So was seen quite efficiently this morning by both my consultants. Basically discussed it with both of them and just said I was confused and unsure and that's why I wanted a second opinion, not because I didn't believe what they were telling me. They certainly didn't seem put out. So today when I asked the clinical one whether she thought I should have radiotherapy she basically implied she thought I shouldn't because I was so unsure. I really hope I get some clarity on Monday because I am just going round in circles on my own.
Yes an echo or a MUGA scan would be nice. If you have herceptin you automatically have either of those pre treatment and every three months during herceptin, which I believe lasts a yr. my tumour was not herceptin receptive, which is actually a good thing because they tend to be more aggressive with a poorer prognosis. Herceptin can definitely cause heart probs which is why they monitor you more closely on it. Because I have no history of heart probs, and am not an over weight smoker with hypertension, they assume my heart is fine.
i think I am getting a nutritionist to come and see me on Tuesday as well, as my wt is way too low. Down to about 45 kg now. Not good!!!
now I just want to enjoy my weekend away, maybe get a good nights sleep for the first time in ages and not think about bloody cancer!!