Gosh I didn't know Rosie had nut issues. What a pain! I was just saying to a friend today how convenient peanut butter is for Eric's lunch.
So first thing this morning I texted my nurse to let her know how pissed off, stressed etc I was about lack of communication, not keeping me informed about when I should be seeing an oncologist. I said if I didnt hear from Barts within a few hrs I would be contacting PALS (the complaints people) So by 11.45 I'd heart nothing so phoned PALS with a no I had on the reply they'd sent to my original complaints letter. I spoke to a very helpful lady who said she's look into it and call me back. Meanwhile I heard back from nurse Nicky who had spoken to the general manager who was going to escalate it directly to the oncologist as there was still no appt for me on the system. Then I heard back from PALS lady who told me the name of the consultant I'd be seeing and said she would be in touch with his secretary. Then I heard back from the nurse who had spoken to the secretary and she was waiting for permission to overbook the clinic as all clinics were full this wk due to annual leave. And then finally, about 1/2 hr ago I had a text from the secretary telling me I had an appt on Friday afternoon. Don't know what time yet, but at least I am in the door! It was really stressing me out as today is 28 days after my 2nd surgery and 53 days after my 1st, and according to NICE guidelines I should start chemo within 31 days of surgery, which os this Thurs!
Anyway......I am slightly less stressed than I was this morning. And we might get to go to Wales JT........what are your plans next week ?
God stupid thunder storm! It was sooooo loud, and long and kept coming back! Need sleep......
hoggle, it's because several of the big London hospitals are grouped together into NHS trusts, so although my local hosp is whipps cross it has fairly recently become part of barts NHS trust, which includes 2 other hospitals including barts. Whipps doesn't do chemo or radiotherapy, so the oncologists and all the kit are over at barts. They also have a brand new trust wide computer system which became live on the day of my first surgery, and no one knew how to use it for weeks, which really is very annoying when you need someone to do something!
So spoke to nurse today, Barts are aware of me......they are trying to fit me in blah blah, I pleaded with her to try and make sure I got an appt next wk (but not M's b day on Wed!) and I told her we were going away next Sat and I really really wanted to see someone before I went. She promised to e mail them saying I was going away, but said she had no sway over at Barts. So annoying having to swap hospitals!
Have to go there tomorrow for a second psychology appt, so not looking forward to getting on the tube in 30c at midday.