Help! I was diagnosed with UC last year and was being treated with asacol and azathioprine. The last month or so has been terrible, especially while running. I've had several appointments with my consultant and specialist nurse but am starting to feel like I'm running out of options. The idea of surgery is massively worrying.
Any positive thoughts would be really encouraging right now!
Peter - as far as I'm aware the seizures themselves are not fatal but falling into traffic, being in water etc can obviously cause problems. I have started running with a mobile phone and only run with others when out on the fells - the people I'm running with are fully aware of my condition and what to do if I have a seizure. I do run on my own but stick to low level paths, close to roads and popular with dog walkers etc. I also take massive pains to let my wife know exactly where I am going and how long I will be - if I'm out for long I'll phone in to let her know how I'm getting on. I always run with a mobile phone, spare top, hat and gloves, food and a survival bag.
When I am next due an upgrade my plan is to get a smartphone with GPS enabled so that my wife can track my real time location using google latitude if she has a sudden 'worry'.
There are specific GPS trackers available but are very expensive: http://www.findmespot.eu/en/
As my consultant said, you need to live your life as normally as possible but have to employ common sense.
Hi folks, I was diagnosed last week with epilepsy. Over the past 10 years I've had three unexplained 'blackouts' and then I've had five over the past six weeks. We're not sure what the trigger is but the GP has been superb and arranged an emergency appointment with a neurologist who made a quick diagnosis and has got me on medication.
Does anyone have any experience of fell running (or indeed any running) with epilepsy? I'm thinking that long races where there's a potential to get lost are out of the question. I've read that exercise can help reduce the likelihood of a seizure but strenuous exercise can, in some cases, bring on a seizure. However, I've never had a seizure after a race so I'm assuming that doesn't affect me.
I run with group out on the hills in a weekly evening training session and they have been really supportive although I'm aware that I'm putting quite a bit of pressure on them in case I do have a seizure while we're out.