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 Paul Kayley
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Paul Kayley 
Posted: 10/05/12 22:23:53 53
Thank u XFR Bear.

I know it's completely different but there's been a lot of public awareness campaigns about dementia of late and if the figures of 600,000 are true then this is so similar to epilepsy yet before April and my own issues I can honestly say I was completely in the dark about epilepsy although I was well aware of dementia via press, tv and family/friends.
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Paul Kayley 
Posted: 09/05/12 18:02:11 11

To Madge/CatRuth,

Thanks to you both for your positivity.  Its been 4 weeks now since my triple-seizure

As you both say its the confidence knock and fear of future events. My wife worrying if a drop the shoe or the toilet seat..

I've sent off for a bracelet & have also setup Google Latitude on my phone so my wife can track my whereabouts.

I'm hoping I can start thinking about some gentle exercise apart from walking soon and get back to what I love and the psychological benefits that it brings.

As you both so its the fact that it is quite a silent/invisible community (which is a good ting) because its not like wearing a plaster cast or  walking with a limp.

PaulK

 

 

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Paul Kayley 
Posted: 07/05/12 21:28:40 40
Hi Fi,

Many thanks for taking the trouble to reply.

Coincidentally I am 44 also.

Things have improved slightly as it turns out my liver was being inflamed by a reaction to the medication I was prescribed and since being withdrawn from this my fever, temperatures and horrific nightmares have stopped.

I'm back at work and just hoping to get through the next few months before considering returning to exercise.

Guess life just doesnt seem fair at times because my diagnosis of epilepsy comes off the back of 15 years of running 30-40 miles a week and then 2 years ago I had a stroke and was finally feeling I was on the mend having taken part in a few parkruns this year.

Rgds Paul
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Paul Kayley 
Posted: 24/04/12 18:21:36 36
I had a seizure, well 3 actually, 2 weeks ago and feel completely devastated by. The whole situation.

Im looking to find any positives with regards to running and although I read there are 600,000 epileptics in the UK I can't find any info on the matter anywhere.

I'm also struggling with the medication which leaves me drained and feverish at times.

Is there anyone else who was diagnosed later in life but label to resume running?

Thx in advance Paul
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Paul Kayley 
Posted: 24/04/12 18:13:58 58
I had a seizure, well 3 actually, just over 2 weeks ago and am trying to find some positives in my current situation.

I'm 44 and was running 5-6 times a week up to 2 years ago when I had a stroke.
I had a relatively quick recovery from the stroke but rightly/wrongly the seizures scare me more.

I'm also finding the side effects of the medication leaving me so drained and feverish I can't ever imagine running again.

As there are said to be 600,000 epileptics in the UK does anyone have any running knowledge of this situation.
Thx Paul
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Latest Discussions
ThreadsRepliesViewsLatest Post
Running with epilepsy
Im a seasoned runner (15 yrs) but new to epilepsy By Paul Kayley
11752
31/12/12 13:33
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by Will Williams 6
Running with Epilepsy
Im an experienced runner (14 yrs) but v new to epilepsy By Paul Kayley
0265
24/04/12 18:13
 View the last post in this thread
by Paul Kayley
Fred Hughes 10
Potential Entrants - RACE IS FULL By PAUL KAYLEY
0139
10/01/07 19:48
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by PAUL KAYLEY
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