Posted: 08/06/2015 at 20:29
Totally different illness to you, so may be completely different. I have a genetic disorder called HHT. Essentially it is an abnormal blood vessel thing that results in bleeds. it has various other symptoms such as anemia and fatigue. I have it very mild as far as I know. For me the main issue (currently) is fatigue.
I'm a bit of a lazy arse. So it's hard to know if i'm using fatigue as an excuse at times.
i try and set realistic goals.
helping to recognise the symptoms does help: makes me realise it is valid what I am feeling
eat and drink as well as possible
and sleep! Knowing that I have had a good nights sleep for 7+ hours helps me during the day as I tell myself: i am refreshed , I slept, I can do this run etc,
what at does your GP or consultant doctor say?